Our first visit after hearing the news was to visit the neurologist, Dr. Whitehead. Dr. Whitehead was very reassuring and gave us more details and information than we could process at the time. I felt like I had been "whammied" and knew that I could only absorb a small amount of the information being shared. In my head I was thinking, "Brain tumor. Brain surgery. Shaving the head. Kira and Naia. Recovery. School. OMG..." Thank goodness Britt was there to ask the medically essential questions. We were very fortunate that Dr. Whitehead brought us in for an appointment even though he wasn't seeing patients that day. I'm not sure we could have waited over the weekend. We knew it wouldn't be good news but Britt and I both are the type who need to knwo what we're facing and tackle it head on. The doctor ordered blood tests and a CT scan to be completed over the next week. We also visited with a social worker, case coorindator and oncologist at this visit. It was a long exhausting overwhelming day filled with tears, worries and lots of love.
After the test results were back, we met again with Dr. Whitehead. However, based on the new information, he no longer felt he was the right doctor for our case or to perform the surgery. He recommended us to Dr. Demonte at MD Anderson, Brain and Spine Center. Dr. Demonte is an expert in tumors at the base of the skull and has more experience and knowledge about this rare form of tumors found in children.
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